Angioma Alliance is the leading patient advocacy organization for those affected by cavernous angioma / cavernous malformation / CCM.
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Arm yourself with the facts.
Gain the power to help yourself and others in the CCM community.
Meet Dr. Connie Lee.
Connie Lee, Psy.D., is the founding President and CEO of Angioma Alliance. Connie is a licensed clinical psychologist and the mother of a daughter with multiple cavernous angiomas. Connie’s personal story with cavernous angioma began in January 2000. At that time, Connie’s 4-month-old daughter Julia received brain surgery for a major hemorrhage and hydrocephalus caused by a cavernous angioma. Dr. Lee founded Angioma Alliance in 2002. She has guided the organization from its beginnings as a support group to its current role as the driving force for research, legislation, and patient care.