The Alliance to Cure Cavernous Malformation is the leading patient advocacy organization for those affected by cavernous angioma / cavernous malformation / CCM.
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Meet Dr. Connie Lee.
Connie Lee, Psy.D., is the founding President and CEO of Angioma Alliance. Connie is a licensed clinical psychologist and the mother of a daughter with multiple cavernous angiomas. Connie’s personal story with cavernous angioma began in January 2000. At that time, Connie’s 4-month-old daughter Julia received brain surgery for a major hemorrhage and hydrocephalus caused by a cavernous angioma. Dr. Lee founded Angioma Alliance in 2002. She has guided the organization from its beginnings as a support group to its current role as the driving force for research, legislation, and patient care.